I’d actually not heard of the possibility of genetic testing, so thank you for that! We are now beginning to wonder if my maternal aunt also had the disease, as she was diagnosed with (and eventually died as a result of) a seizure disorder of unknown etiology.

Over the past several months I’ve actually been able to pinpoint several other food intolerances that I’m quite certain were causing most if not all of my GI issues. (That’s probably worth another post on its own — I’m a bit bewildered that no doctor ever suggested the possibility of conducting an elimination diet for other triggers.) But I realised early this summer that I was regularly experiencing a bad bout of heartburn after eating my mum’s rice toast in morning. Then after spending the weekend with a friend who cooked a lot of rice, I became violently ill — and realised rice might be a culprit. Once I’d cut that out, and my GI upset wasn’t quite so constant, I started noticing other triggers, in particular eggs and soy (which, like wheat, is now in an astonishing number of processed foods). Since cutting out those three ingredients, my GI issues have been drastically improved, and I notice an almost immediate resurgence if I accidentally ingest one of them. (Within about fifteen minutes, I can tell ‘oh damn, I’ve just had some egg / soy / rice.’)

That being said, given my family history with coeliac, I think the genetic testing is definitely worth looking into. Thank you for bringing it to my attention!


Disability-led design & health justice. Director of Communications for The Disabled List. They / theirs. Tip jar: paypal.me/alexhaagaard

Love podcasts or audiobooks? Learn on the go with our new app.

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store